Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
July 2024
- Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796 ). J Palliat Med ..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Stress Among Parents of Children With Severe Neurological Impairment in the Pediatric Intensive Care Unit (PMID: 38546796). Journal of palliative medicine.
UW Peds contributing authors: Jori Bogetz , Ellie Oslin, Krysta S Barton, Amy Trowbridge, Joyce Yi-Frazier, R Scott Watson Bioethics and Palliative Care Critical Care Medicine - Genetic research within Indigenous communities: Engagement opportunities and pathways forward (PMID: 38699966). Genetics in medicine : official journal of the American College of Medical Genetics.
UW Peds contributing authors: Krysta S Barton, Kathryn M Porter Bioethics and Palliative Care - Advancing Genetic Testing in Kidney Diseases: Report From a National Kidney Foundation Working Group (PMID: 39033956). Am J Kidney Dis.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Shared Decision-Making About Returning to Sport After Recovery From Pediatric Concussion: Clinician Perspectives (PMID: 39037366). Clinical journal of sport medicine : official journal of the Canadian Academy of Sport Medicine.
UW Peds contributing authors: Emily Kroshus-Havril, Douglas J Opel, Thomas M Jinguji, Mary Kathleen Steiner, Kirsten Senturia , Celeste Quitiquit, Monique S Burton , Brian J Krabak, Jeanette P Kotch, Frederick P Rivara Bioethics and Palliative Care - Shared Decision-Making About Returning to Sport After Recovery From Pediatric Concussion: Clinician Perspectives (PMID: 39037366 ). Clin J Sport Med.
UW Peds contributing authors: Emily Kroshus-Havril, Douglas J Opel, Thomas M Jinguji, Mary Kathleen Steiner, Kirsten Senturia, Monique S Burton, Celeste Quitiquit, Brian J Krabak, Jeanette P Kotch, Frederick P Rivara Bioethics and Palliative Care - Perspectives of pediatric oncologists on referral for CAR-T therapy: a mixed methods pilot study (PMID: 39078720). JNCI Cancer Spectrum.
UW Peds contributing authors: Benjamin Wilfond, Devan M Duenas Bioethics and Palliative Care - Evaluation of mailed results versus telephone disclosure of normal cancer genetic test results in a low-risk underserved population (PMID: 10.1093/tbm/ibad084). Translational Behavioral Medicine.
UW Peds contributing authors: Ben Wilfond Bioethics and Palliative Care - Perspectives of pediatric oncologists on referral for CAR-T therapy: a mixed methods pilot study (PMID: 39078720 ). JNCI Cancer Spectrum.
UW Peds contributing authors: Anurekha G Hall, Devan M Duenas, Adam J Lamble, Elizabeth Gruber, Benjamin Wilfond Bioethics and Palliative Care Hematology, Oncology, Bone Marrow Transplant, and Cellular Therapy
June 2024
- A call to action: An urgent need for national efforts to expand access to pediatric home healthcare (PMID: 38869183). Pediatric pulmonology,.
UW Peds contributing authors: Holly Hoa Vo Bioethics and Palliative Care - A call to action: An urgent need for national efforts to expand access to pediatric home healthcare. (PMID: 38869183). Pediatr Pulmonol.
UW Peds contributing authors: Holly Hòa Võ Bioethics and Palliative Care - In Response to, "Preferences for potential benefits and risks for gene therapy in the treatment of sickle cell disease". Blood Advances.
UW Peds contributing authors: Ben Wilfond Bioethics and Palliative Care - In Response to, "Preferences for potential benefits and risks for gene therapy in the treatment of sickle cell disease" (PMID: 38865716). Blood advances.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Ethical and Equity Guidance for Transplant Programs Considering Thoracoabdominal Normothermic Regional Perfusion (TA-NRP) for Procurement of Hearts (PMID: 38829597). The American journal of bioethics.
UW Peds contributing authors: Denise M Dudzinski , Jay D Pal , James N Kirkpatrick Bioethics and Palliative Care - Ethical and Equity Guidance for Transplant Programs Considering Thoracoabdominal Normothermic Regional Perfusion (TA-NRP) for Procurement of Hearts. The American Journal of Bioethics.
UW Peds contributing authors: D.M. Dudzinski Bioethics and Palliative Care - The companion dog as a model for inflammaging: a cross-sectional pilot study (PMID: 38822125). GeroScience.
UW Peds contributing authors: Daniel E L Promislow, Benjamin S Wilfond Bioethics and Palliative Care
May 2024
- Vaccine Confidence as Critical to Pandemic Preparedness and Response (PMID: 38754938). Pediatric Clinics of North America.
UW Peds contributing authors: Annika Hofstetter, Douglas J Opel Bioethics and Palliative Care General Pediatrics - Family Responses to Different Types of Clinician Empathy Expression in Pediatric Care Conferences (PMID: 38048291 ). J Palliat Med.
UW Peds contributing authors: Aleksandra E Olszewski, Jori Bogetz , Miranda C Bradford, Maya Scott, Blanca Fields , Kelli Williams , Abby R Rosenberg, Amy Trowbridge Bioethics and Palliative Care - The American Association for Thoracic Surgery (AATS) 2023 Expert Consensus Document: Recommendation for the care of children with trisomy 13 or trisomy 18 and a congenital heart defect (PMID: 38284966). The Journal of thoracic and cardiovascular surgery.
UW Peds contributing authors: Aarti Bhat , Benjamin S Wilfond Bioethics and Palliative Care - Advancing genomics to improve health equity (PMID: 38684898). Nature genetics.
UW Peds contributing authors: Benjamin Wilfond Bioethics and Palliative Care - Interpersonal Influences on the Choice to Treat Nausea during Pregnancy with Medication or Cannabis (PMID: 37774747). Journal of perinatology.
UW Peds contributing authors: Amanda H Mercer, Katherine E MacDuffie , Elliott M Weiss , Allegra Johnson, Stephen R Dager , Natalia Kleinhans Bioethics and Palliative Care
April 2024
- Management dilemmas in pediatric nephrology: moving from friction to flourishing in "challenging" cases (PMID: 38668777). Pediatric nephrology.
UW Peds contributing authors: Aaron Wightman Bioethics and Palliative Care - Measuring perceived utility of genomic sequencing: Development and validation of the GENEtic Utility (GENE-U) scale for pediatric diagnostic testing (PMID: 38676451). Genetics in Medicine : Official Journal of The American College of Medical Genetics.
UW Peds contributing authors: Benjamin Wilfond, Lucas T Harrington Bioethics and Palliative Care - Children's understanding of dying and death: A multinational grounded theory study. (PMID: 36960605). Palliat Support Care . .
UW Peds contributing authors: Paula McPoland Bioethics and Palliative Care - Children's understanding of dying and death: A multinational grounded theory study. (PMID: 36960605 ). Palliat Support Care.
UW Peds contributing authors: Paula McPoland Bioethics and Palliative Care