Newborn screening (NBS) programs across the nation identify babies at risk of serious but treatable conditions that aren't otherwise found at birth. They enable doctors to diagnose conditions quickly and start treatment as soon as possible.
Recently, Congress directed the Department of Health and Human Services' Office on Women's Health to commission a study with the National Academies to identify key actions at the state and federal level that could help to strengthen and modernize these essential programs.
The National Academies wants to hear from people impacted by, and interested in, newborn screening programs in the U.S., including families with children, the rare disease community, public health professionals, clinical care providers, health care administrators, and health care payers. Learn more
Share your ideas on today's programs, as well as future changes you'd like to see, through listening sessions – register here. Please fill out the online questionnaire open through May 21, 2024.
Written comment submissions can be placed on the project web page or send your thoughts to Newborn Screening.