Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
November 2025
- Optimal Care to Promote Flourishing: Articulating the Purpose of Pediatric Nephrology (PMID: 40819687). Am J Kidney Dis ..
UW Peds contributing authors: Aaron Wightman Bioethics and Palliative Care - Ethics of Lifestyle Counsel Alone in a GLP-1 Era (PMID: 40982274). JAMA Pediatr.
UW Peds contributing authors: Douglas S Diekema, Kathryn M Stephenson Bioethics and Palliative Care
October 2025
- High Standards: Hiring Fellowship-Trained Clinical Ethics Consultants. (PMID: 40965493 ). Am J Bioeth ..
UW Peds contributing authors: Denise Dudzinski Bioethics and Palliative Care - Breaches of Confidentiality and Duty to Warn in Medical Genetics: It's Just Not in Our DNA (PMID: 40965481). Am J Bioeth ..
UW Peds contributing authors: Samantha Schrier Vergano, Denise Dudzinski Bioethics and Palliative Care Genetic Medicine - Delivery of Elexacaftor/Tezacaftor/Ivacaftor (ETI) Through Placenta and Then Breastmilk in Cystic Fibrosis: A Clinical Trial Risk-Benefit Analysis (PMID: 40965478). Am J Bioeth.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - A Stated Intention to Lactate: Considerations of the Flaws of Subjective Inclusion Criteria Within Pediatric Research (PMID: 40965480). Am J Bioeth.
UW Peds contributing authors: Katie M Strobel, Elliott Mark Weiss Bioethics and Palliative Care Neonatology - Everolimus and Low-Dose Tacrolimus After Heart Transplant in Children: A Randomized Clinical Trial (PMID: 40960806). JAMA .
UW Peds contributing authors: Aaron Wightman Bioethics and Palliative Care - Climate change and environmental degradation: bioethical considerations and impact for neonatal care (PMID: 40514319). Semin Perinatol.
UW Peds contributing authors: McKenna F Parnes, Luke Mosley, Elliott Mark Weiss Bioethics and Palliative Care - The Network of Pediatric Palliative Care Educators: Cultivating Community in Interprofessional Education (PMID: 40545067). J Pain Symptom Manage.
UW Peds contributing authors: Amy Trowbridge, Arika Moore Patneaude Bioethics and Palliative Care - Parents (of minors) are not surrogates: acknowledging (finally) the unique moral space of parents (PMID: 40858991). Theor Med Bioeth.
UW Peds contributing authors: Douglas S. Diekema Bioethics and Palliative Care
September 2025
- Revisiting infusion rate limitations for continuous lumbar plexus blocks in children and adolescents with 0.2% ropivacaine: a pharmacokinetic analysis (PMID: 41021756). Anesthesiology.
UW Peds contributing authors: Katherine R Gentry Bioethics and Palliative Care - Inpatient Symptom Prevalence, Severity, and Improvement in Children Referred for Pediatric Palliative Care Consultation: Findings from a Multisite Quality Improvement Registry (PMID: 40998088). J Pediatr.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Differences in Pain Episodes Among Children With Complex Chronic Conditions at End of Life (PMID: 40998221). J Pain Symptom Manage.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Should a Genomic Diagnosis be a Ticket or a Roadmap? Threats to Equity in the Pursuit of Developmental Services in Early Childhood (PMID: 40952722). Am J Bioeth.
UW Peds contributing authors: Katherine E MacDuffie Bioethics and Palliative Care - Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group (PMID: 40578353). Stem Cell Reports.
UW Peds contributing authors: Katherine E MacDuffie Bioethics and Palliative Care - Now I have to act on that": Parent anticipation of a therapeutic odyssey following predictive testing for autism (PMID: 40964016). Res Sq.
UW Peds contributing authors: Katherine E MacDuffie, Benjamin S Wilfond Bioethics and Palliative Care
August 2025
- Development of a Tool to Measure the Dyadic Process of Shared Decision Making in Young Children: The Making Decisions for Kids (MADE for Kids) Survey (PMID: 40781752). Medical Decision Making.
UW Peds contributing authors: Doug Opel, Emily Kroshus, Elliott M Weiss, Chuan Zhou Bioethics and Palliative Care General Pediatrics Neonatology - Normothermic Regional Perfusion in Pediatric Organ Recovery-Guidelines for Its Ethical Implementation (PMID: 40445903). Pediatr Transplant . .
UW Peds contributing authors: Emily Berkman, Jonna Clark, Denise Marie Dudzinski Bioethics and Palliative Care
July 2025
- Adherence to 24-Hour Movement Guidelines and Behavioral Health in Children With Attention Deficit Hyperactivity Disorder in the United States (PMID: 40639796). Journal of Physical Activity & Health.
UW Peds contributing authors: McKenna Parnes, Jason Mendoza, Pooja Tandon Bioethics and Palliative Care General Pediatrics - A Qualitative Study of CMC Caregivers' Perspectives about their Emotional Well-Being (PMID: 40187377). J Pain Symptom Manage. .
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
June 2025
- Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: 40081622). J Pain Symptom Manage . .
UW Peds contributing authors: Jori Bogetz Bioethics and Palliative Care - Improving Access to Technology-Driven Critical Care Interventions in Children With Severe Neurological Impairment (PMID: 40476840). Pediatr Crit Care Med.
UW Peds contributing authors: Jori F Bogetz , Aaron Wightman Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: 40081622 ). J Pain Symptom Manage ..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Uncertainties in the NICU: a scoping review to inform a tailored taxonomy (PMID: 40240841). Journal of perinatology.
UW Peds contributing authors: Elliott Mark Weiss Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: PMC12065655). J Pain Symptom Manage.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care