Bioethics And Palliative Care Publications
The listings below highlight research and contributions by UW Pediatrics faculty. These listings are not intended as a citation but rather a call-out of UW Pediatrics contributions. For official authorship please click the publication link provided.
August 2025
- Development of a Tool to Measure the Dyadic Process of Shared Decision Making in Young Children: The Making Decisions for Kids (MADE for Kids) Survey (PMID: 40781752). Medical Decision Making.
UW Peds contributing authors: Doug Opel, Emily Kroshus, Elliott M Weiss, Chuan Zhou Bioethics and Palliative Care General Pediatrics Neonatology - Normothermic Regional Perfusion in Pediatric Organ Recovery-Guidelines for Its Ethical Implementation (PMID: 40445903). Pediatr Transplant . .
UW Peds contributing authors: Emily Berkman, Jonna Clark, Denise Marie Dudzinski Bioethics and Palliative Care
July 2025
- Adherence to 24-Hour Movement Guidelines and Behavioral Health in Children With Attention Deficit Hyperactivity Disorder in the United States (PMID: 40639796). Journal of Physical Activity & Health.
UW Peds contributing authors: McKenna Parnes, Jason Mendoza, Pooja Tandon Bioethics and Palliative Care General Pediatrics - A Qualitative Study of CMC Caregivers' Perspectives about their Emotional Well-Being (PMID: 40187377). J Pain Symptom Manage. .
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
June 2025
- Improving Access to Technology-Driven Critical Care Interventions in Children With Severe Neurological Impairment (PMID: 40476840). Pediatr Crit Care Med.
UW Peds contributing authors: Jori F Bogetz , Aaron Wightman Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: 40081622). J Pain Symptom Manage . .
UW Peds contributing authors: Jori Bogetz Bioethics and Palliative Care - Uncertainties in the NICU: a scoping review to inform a tailored taxonomy (PMID: 40240841). Journal of perinatology.
UW Peds contributing authors: Elliott Mark Weiss Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: PMC12065655). J Pain Symptom Manage.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care - Safe Enough: Subjective Determinations in Hospital Discharge for Patients With Medical Complexity (PMID: 40355131). Pediatrics . .
UW Peds contributing authors: Holly Hoa Vo Bioethics and Palliative Care - Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care (PMID: 40081622 ). J Pain Symptom Manage ..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
May 2025
- Towards better enrollment decision-making for perinatal clinical research: Reconsidering recruitment and consent processes to support family values and preferences. Seminars in Perinatology.
UW Peds contributing authors: Elliott Weiss, Benjamin Wilfond Bioethics and Palliative Care Neonatology - Medical, Societal, and Ethical Considerations for Directed Blood Donation in 2025 (PMID: 40354666). Ann Intern Med . .
UW Peds contributing authors: Mithya Lewis-Newby Bioethics and Palliative Care - Parental Communication with their Children about Cancer Risk and DTC Cascade Genetic Testing: Implications for Genetic Education and Counseling (PMID: 40357860). Am J Med Genet A . .
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation. (PMID: 40288781). Hosp Pediatr..
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
April 2025
- Uncertainties in the NICU: a scoping review to inform a tailored taxonomy. Journal of Perinatology.
UW Peds contributing authors: Elliott Weiss Bioethics and Palliative Care Neonatology - Tiered Clinician Vaccine Communication Strategy to Improve Childhood Vaccine Uptake: A Cluster Randomized Clinical Trial (PMID: 40305020 ). JAMA Netw Open.
UW Peds contributing authors: Douglas J Opel , Chuan Zhou Bioethics and Palliative Care General Pediatrics - Institutional Access to Gene Therapy for Sickle Cell Disease - Treatment on a Clinical Trial or Receive a Newly Approved Therapy? (PMID: 40192672). Am J Bioeth.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - Towards better enrollment decision-making for perinatal clinical research: Reconsidering recruitment and consent processes to support family values and preferences (PMID: 40404236). Semin Perinatol.
UW Peds contributing authors: Elliott Mark Weiss , Benjamin Wilfond Bioethics and Palliative Care
March 2025
- Pediatric Transplant Surgeons' Perspectives on Palliative Care for Children With Chronic Kidney Disease: A National Cross-Sectional Survey (PMID: 39873397). Pediatric Transplant.
UW Peds contributing authors: Aaron Wightman , Jodi Smith Bioethics and Palliative Care - Serotonergic Psychedelics Rapidly Modulate Evoked Glutamate Release in Cultured Cortical Neurons (PMID: 40022486). J Neurochem.
UW Peds contributing authors: Elliott Mark Weiss, Amy Trowbridge Bioethics and Palliative Care - Research Priorities in Neuropalliative Care: A Consensus Statement From the International Neuropalliative Care Society (PMID: 39899319). JAMA Neurol.
UW Peds contributing authors: Jori F Bogetz Bioethics and Palliative Care
February 2025
- Pediatric DTC Genetic Testing for Adult-Onset Inherited Cancer Risk: The Perspectives of High-Risk Parents. (PMID: 39908008 ). Public Health Genomics.
UW Peds contributing authors: Benjamin S Wilfond Bioethics and Palliative Care - No Vaccine, No Organ? Ethics of Vaccine Mandates for Pediatric Transplant (PMID: 39776025). Pediatric Transplant.
UW Peds contributing authors: Aaron Wightman, Elliott M Weiss Bioethics and Palliative Care - SeqFirst: Building equity access to a precise genetic diagnosis in critically ill newborns (PMID: 39999847). Am J Hum Genet ..
UW Peds contributing authors: Tara L Wenger, Alexandra Keefe, Kati J Buckinham, Colby T Marvin, Kathryn M Shively, Tamara Bacus, Olivia M Sommerland, Kailyn Anderson, Heidi Gildersleeve, Chayna J Davis, Katherine E MacDuffie, Danny E Miller, Joon-Ho Yu, Daniel A Doherty, Katrina Dipple, Jessica X Chong, Michael J Bamshad Bioethics and Palliative Care Genetic Medicine Neonatology - How will developmental neuroimaging contribute to the prediction of neurodevelopmental or psychiatric disorders? Challenges and opportunities (PMID: 39626161 ). JCO precision oncology.
UW Peds contributing authors: Brittany L Greene, Aaron G Wightman Bioethics and Palliative Care